Privacy considerations
A note on privacy
It's important to consider that, as new and more personal data around live experience, mental health, and other factors are gathered, data privacy and security are critical to ensuring customers' safety.
The concept of the cross-organization customer model is to build anonymized aggregate, cross-referencable data points, not to track individual users and their detailed personal history.
Steps should be taken to hold a high standard of regard for individual privacy, particularly for people from marginalized communities.
Learn more
Cobun Zweifel-Keegan shares more on this topic from The International Association of Privacy Professionals in the article A view from DC: Privacy gets inclusive.
He also expands on privacy and data protection in the related and more expansive Tweet stream on how inclusive design practices should consider three kinds of threat models.
- Insider attacks and harms that can be perpetrated on users via design choices
- Users hurting each other or misusing features
- Governments leveraging, misusing, or weaponizing data.
For consideration
The bottom line: personal lived experience data may cause harm to vulnerable users if it is made available to employers or other actors who may be in a position of power or influence over the user.